In recent years, news have emerged from time to time that point to the potential benefit of some drugs for congenital muscular dystrophy patients. Although they do not hope to cure the disease, these drugs do seek to alleviate the…
Fundación Noelia and the National Institute of Neurological Disorders and Stroke (NINDS) in the US have just signed a collaboration agreement by which Fundación Noelia will fund a new research project led by Dr. Carsten Bönnemann, with a total contribution…
In Noelia Foundation we continue with the research projects, despite the current difficulties caused by COVID-19. We have held the annual meeting, to follow the evolution of the research projects financed by the Noelia Foundation, and to know the next…
Noelia Foundation participates in the Conference on Rare and Complex Diseases at the Hospital Sant Joan de Déu in Barcelona Last February 27, 2020, the Conference on Rare and Complex Diseases and 1st Exhibition of Patients' Associations was held, organized…
The charity concert of the gospel group Living Water took place on Jan. 11th and 12th, in Reus and Amposta, respectively, with an tremendous success, gathering over …. people and hanging the “sold out” sign in La Lira Ampostina Theatre.…
Beneficial CONCERT, The Tutsies. LUZ DE GAS Room, Barcelona Tuesday, November 19, 2019, 8:30 p.m. Ticket sales: Tel.:699 088 592 Coming soon online!
One more year Noelia Foundation present in the Day of families with Neuromuscular Diseases, organized by the NRM team of the Sant Juan de Dios Hospital in Barcelona. These have been very rewarding days, since we have seen that the…
The Hospital Sant Joan de Déu, in Barcelona, echoes the new donation of the Noelia Foundation to continue financing the research project "NATURAL HISTORY, DIAGNOSIS AND TREATMENT OF COLLAGEN VI-RELATED MUSCULAR DYSTROPHIES", which enters its second phase of action. Read…
Last July, Noelia Foundation attended the 2019 Congenital Muscle Disease Scientific & Family Conference organized in Chicago by Cure CMD, an event that brought together researchers from around the world to share their experience on these congenital diseases. Once again,…
The Noelia Foundation is the main provider of funds for the research project initiated at the Hospital Sant Joan de Déu in Barcelona last 2017, to which 163,500 € have already been allocated over in the last three years. This…
