From the Noelia Foundation we have made a second donation of €45,600 to the Sant Joan de Deu Hospital (Barcelona) which allows us to continue with the CRISPR research project led by Dr. Cecilia Jimenez. This payment completes the financing…
Last July the Mexican team Atlas F.C. made a donation of 25,000 Mexican pesos (€1,500) to Fundación Noelia, which will be used entirely to finance the research. This collaboration comes from the hand of Ilan, godfather of Atlas and affected…
At Fundación Noelia we have signed a collaboration agreement with the University of Deusto to work in the psychosocial field of Col6 affected. The objective of this agreement is the mutual participation between the Noelia Foundation and the University of…
On July 20, like every year, the Blanc i Blava fan group from Mora la Nova gived us its annual donation. Thank you very much for continuing to help our cause and adding minutes of research.
After 6 years we have to put an END to our Solidarity lids Collection campaign. The collection of solidarity lids has been a campaign that helped us a lot in our beginnings and with which over the years it has…
Almost 300 businessmen and professionals from the tourism sector have celebrated the first Night of the Stars organized by the Tarragona Province Hospitality and Tourism Business Federation (FEHT). During the evening, the Costa Daurada Tourist Charity Association carried out a…
Last week, delegates of Fundación Noelia attended the 2022 edition of the SciFam Meeting 2022 by CureCMD in Nashville, Tennessee (USA). At the event, leading members of the research community presented their results and discussed with fellow scientists about the…
On June 10, 11 and 12, 2022, the I Scientific and Family Meeting Muscular Dystrophy Collagen VI took place virtually, organized by the Noelia Foundation. During the first two days, scientific and clinical issues were discussed, while the last day…
On February 23rd, 2021, we participated in one of the seminars organized by ASEM Catalonia: COVID-19 vaccine and neuromuscular diseases, a virtual lecture given by Dr. Olivé, neurologist at Sant Pau University Hospital and Dr. Natera, neuropediatrician at the Sant…
In recent years, news have emerged from time to time that point to the potential benefit of some drugs for congenital muscular dystrophy patients. Although they do not hope to cure the disease, these drugs do seek to alleviate the…
