Closing the year it is time to do the numbers and see what this 2022 has given. From Fundación Noelia we have invested €173,853.49 during 2022 in the research of Congenital Muscular Dystrophy caused by dèficit in Collagen VI, specifically…
Since last November 2022, Fundación Noelia has been part of EURORDIS, which allows us to have a voice and include ColagenoVI in its forums and workshops. What is EURORDIS? EURORDIS is a patient-driven, non-governmental alliance of patient organizations and…
Fundacion Noelia and the Biocruces Bizkaia Health Research Institute have signed a collaboration agreement to finance a research project "EVALUATION AND DEVELOPMENT OF PERSONALIZED THERAPIES FOR MUSCULAR DYSTROPHIES DUE TO COLLAGEN DEFICIENCY VI" This project has two objectives: Develop and…
From Fundación Noelia we continue to make #NeuromuscularDiseases visible, and specifically to the DMC due to collagen VI deficiency. On this occasion, and within the framework of 15N (Day of Neuromuscular Diseases) we visited the Camarles Institute where Noelia and…
Challenge achieved: Noelia Foundation delivers €31,374 that will be allocated to the research project "CLOSING THE THERAPEUTIC GAP FOR CONGENITAL MUSCULAR DYSTROPHIES". This project will make it possible to test the effectiveness of Crispr in mice and will be developed…
On November 26, the FN team participated for another year in the 9th Information Conference for Patients and Families with Neuromuscular Diseases. In this already endearing scientific event organized by the SJD Hospital in Barcelona, one of the flagship institutions…
Noelia Foundation participates in the VI Scientific Meeting of the Italian association of DMC-Col6 patients, Collagene VI Italia APS On October 29, 2022, the Noelia Foundation participated in the VI Scientific Meeting of its Italian counterpart Collagene VI Italia APS.…
Saturday, November 19, 2022. Auditorium Theater Camp de Mart (Tarragona) Ticket: €25 (Buy it here) We have a challenge, to make research possible and contribute to finding a cure for this serious disease. Our objective is to obtain €30,000 for…
In Navarra, over the last few months, different events and actions have been carried out with which 3,025 euros have been raised in favor of the Noelia Foundation. In Etxauri a racquetball championship was organized in which a raffle was…
La Caixa has made a donation of €3,000 for the social project "You are not alone" developed by Fundación Noelia. This donation allows us to promote the "You are not alone" project aimed at the social and emotional well-being of…
