Live a rare disease, live with the,
live with the Congenital Muscular
Dystrophy due to collagen deficiency

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  SCIENTIFIC DAY “NANO RARE DISEASES DAY”. HSJD Barcelona

  March 2nd, 20200
  Noelia Foundation participates in the Conference on Rare and Complex Diseases at the Hospital Sant Joan...

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  VI DAY OF FAMILIES WITH NEUROMUSCULAR DISEASES, HSJD BARCELONA OCTOBER 2019

  October 28th, 20190
  One more year Noelia Foundation present in the Day of families with Neuromuscular Diseases, organized by...

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  Gospel Living Water in concert: a huge success

  January 16th, 20200
  The charity concert of the gospel group Living Water took place on Jan. 11th and 12th,...

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  (CA) L’Agrupació Barça Jugadors s’uneixen a la lluita contra la Distròfia Muscular per dèficit de col·lagen VI!!!

  November 29th, 20190
  Sorry, this entry is only available in CA and European Spanish....

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  (ES) CONCIERTO, CORO GOSPEL “LIVING WATER”

  November 29th, 20190
  Sorry, this entry is only available in European Spanish....

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  (CA) L’Agrupació Barça Jugadors s’uneixen a la lluita contra la Distròfia Muscular per dèficit de col·lagen VI!!!

  November 29th, 20190
  Sorry, this entry is only available in CA and European Spanish....

EXHIBITION - RARE ARTISTS

28th February International Day of Rare Diseases. Uruguay 2019

Noelia Foundation official song

"Dale Fuerza, Dale vida"

“Dedicated to the History of Noelia Foundation and all Collagen VI families”

From the singer-songwriter, José Luis Caballero. November 2018