Live a rare disease, live with the,
live with the Congenital Muscular
Dystrophy due to collagen deficiency

→ COLLABORATE ←

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  Fundación Noelia makes a new donation of € 44,000

  July 30th, 20190
  The Hospital Sant Joan de Déu, in Barcelona, echoes the new donation of the Noelia Foundation...

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  Noelia Foundation at the “2019 Congenital Muscle Disease Scientific & Family Conference” in Chicago

  July 29th, 20190
  Last July, Noelia Foundation attended the 2019 Congenital Muscle Disease Scientific & Family Conference organized in...

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  (ES) ¡¡La Agrupación Barça Jugadores se unen a la lucha contra la Distrofia Muscular por déficit de colágeno VI!!

  September 15th, 20190
  Sorry, this entry is only available in ES and CA....

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  (ES) Éxito total de la campaña “crowdfunding solidario CaixaBank”, con la colaboración de Obra Social “La Caixa”

  May 30th, 20190
  Sorry, this entry is only available in ES and CA....

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  (ES) IV Torneo Solidario de Pádel Fundación Noelia

  September 17th, 20190
  Sorry, this entry is only available in ES and CA....

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  (ES) ¡¡La Agrupación Barça Jugadores se unen a la lucha contra la Distrofia Muscular por déficit de colágeno VI!!

  September 15th, 20190
  Sorry, this entry is only available in ES and CA....

EXHIBITION – RARE ARTISTS

28th February International Day of Rare Diseases. Uruguay 2019

Noelia Foundation official song

“Dale Fuerza, Dale vida”

“Dedicated to the History of Noelia Foundation and all Collagen VI families”

From the singer-songwriter, José Luis Caballero. November 2018