Give Him Strength, Give Him Life!
Know
Fundación Noelia
We are a non-profit organization that represents and welcomes people affected by Muscular Dystrophy due to collagen VI deficiency and their families. Our mission is to give visibility to this disease and those who suffer from it, and ensure that it continues to be investigated here and outside of Spain.
PATIENT REGISTRATION
We believe that it is important that the registry be worldwide,
for better coordination and use of resources.
Give him life!
Day-to-day of the foundation
COL6 DAY: EVirtual Event
On June 6th, the first virtual edition of COL6 DAY took place, an event organized…
New advance in the research of Congenital Muscular Dystrophy due to Collagen Deficiency VI (CMD COL6)
The Fundación Noelia has funded an innovative study led by researcher Virginia Arechavala-Gomeza, which takes…
Conference on Rare Disease Research Organized by FEDER
The Importance of Patient Participation in Rare Disease Research This event, organized by FEDER (Spanish…
February 29, International Day of Rare Diseases
On World Rare Disease Day, we raise our voices to shed light on collagen VI…
News and Events
Yesterday, we bid a final farewell to Josep Maria Canela (l’Agustí), co-founder of the Noelia…
On March 7, 2025, the Fundación Noelia had the honor of participating in the Nano…
The Fundación Noelia has funded an innovative study led by researcher Virginia Arechavala-Gomeza, which takes…
Last December, thanks to the incredible solidarity of so many people, the "Together we make…
Research Projects
Follow Us!
Noelia Foundation official song
¡Dale Fuerza,
Dale Vida!
“Dedicated to the History of Noelia Foundation and all Collagen VI families”
From the singer-songwriter, José Luis Caballero. November 2018
Give solidarity. Give research minutes.
Give the Noelia Foundation.
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