Give Him Strength, Give Him Life!
Know
Fundación Noelia
We are a non-profit organization that represents and welcomes people affected by Muscular Dystrophy due to collagen VI deficiency and their families. Our mission is to give visibility to this disease and those who suffer from it, and ensure that it continues to be investigated here and outside of Spain.
PATIENT REGISTRATION
We believe that it is important that the registry be worldwide,
for better coordination and use of resources.
Give him life!
Day-to-day of the foundation
FN 2023 objective: €237,000 for research
We need your help! It all adds up! These funds will make it possible to…
$12,500 to continue supporting research
Fundación Noelia makes the second contribution of $12,500 to the project led by Dr.Bönneman's team…
€173,853 invested in research in 2022
Closing the year it is time to do the numbers and see what this 2022…
Noelia Foundation is part of EURORDIS
Since last November 2022, Fundación Noelia has been part of EURORDIS, which allows us to…
News and Events
Yesterday, on the occasion of the international day for rare diseases, the Bakers PCB group…
Run or walk for Collagen VI Deficiency Congenital Muscular Dystrophy! Sunday March 26, 100% solidarity…
We continue to add support from our families. Today it comes to us from Argentina.…
FNIH (The Foundation for the National Institutes of Health) has recently published an article titled…
Research Projects
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Noelia Foundation official song
¡Dale Fuerza,
Dale Vida!
“Dedicated to the History of Noelia Foundation and all Collagen VI families”
From the singer-songwriter, José Luis Caballero. November 2018
