Give Him Strength, Give Him Life!
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Fundación Noelia
We are a non-profit organization that represents and welcomes people affected by Muscular Dystrophy due to collagen VI deficiency and their families. Our mission is to give visibility to this disease and those who suffer from it, and ensure that it continues to be investigated here and outside of Spain.
PATIENT REGISTRATION
We believe that it is important that the registry be worldwide,
for better coordination and use of resources.
Give him life!
Day-to-day of the foundation
Fundación Noelia participates in a new edition of CureCMD’s Science & Family Meeting on Congenital Muscular Dystrophies
Last week, delegates of Fundación Noelia attended the 2022 edition of the SciFam Meeting 2022…
Collagen VI Meeting 2022
On June 10, 11 and 12, 2022, the I Scientific and Family Meeting Muscular Dystrophy…
COVID-19 VACCINES AND NEUROMUSCULAR DISEASES, 23
On February 23rd, 2021, we participated in one of the seminars organized by ASEM Catalonia:…
An update on potential adjuvant therapies in Collagen VI CMD: Alisporivir, Givinostat and Omigapil
In recent years, news have emerged from time to time that point to the potential…
News and Events
Last week, delegates of Fundación Noelia attended the 2022 edition of the SciFam Meeting 2022…
The charity concert of the gospel group Living Water took place on Jan. 11th and…
Beneficial CONCERT, The Tutsies. LUZ DE GAS Room, Barcelona Tuesday, November 19, 2019, 8:30 p.m.…
On March 21, 1919, the novelties were published on the "in vitro" works in patient…
Research Projects
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Noelia Foundation official song
¡Dale Fuerza,
Dale Vida!
“Dedicated to the History of Noelia Foundation and all Collagen VI families”
From the singer-songwriter, José Luis Caballero. November 2018
