Give Him Strength, Give Him Life!
Know
Fundación Noelia
We are a non-profit organization that represents and welcomes people affected by Muscular Dystrophy due to collagen VI deficiency and their families. Our mission is to give visibility to this disease and those who suffer from it, and ensure that it continues to be investigated here and outside of Spain.
PATIENT REGISTRATION
We believe that it is important that the registry be worldwide,
for better coordination and use of resources.
Give him life!
Day-to-day of the foundation
New advance in the research of Congenital Muscular Dystrophy due to Collagen Deficiency VI (CMD COL6)
The Fundación Noelia has funded an innovative study led by researcher Virginia Arechavala-Gomeza, which takes…
February 29, International Day of Rare Diseases
On World Rare Disease Day, we raise our voices to shed light on collagen VI…
Fundación Noelia has received support from the “la Caixa” Foundation, through CaixaBank
Noelia Children's Foundation against congenital muscular dystrophy due to Collagen VI deficiency has received support…
New contribution to Dr. Bönnemann’s team
Thanks to you, Fundación Noelia, achieves one of its goals for 2023 and donates $120,000…
News and Events
Research Projects
Noelia Foundation official song
¡Dale Fuerza,
Dale Vida!
“Dedicated to the History of Noelia Foundation and all Collagen VI families”
From the singer-songwriter, José Luis Caballero. November 2018
Give solidarity. Give research minutes.
Give the Noelia Foundation.
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This product has multiple variants. The options may be chosen on the product page
Neceser
12,00€ -
This product has multiple variants. The options may be chosen on the product page
Neceser
12,00€ -
This product has multiple variants. The options may be chosen on the product page
Llavero personalizable
5,00€ – 5,50€