Give Him Strength, Give Him Life!
Know
Fundación Noelia
We are a non-profit organization that represents and welcomes people affected by Muscular Dystrophy due to collagen VI deficiency and their families. Our mission is to give visibility to this disease and those who suffer from it, and ensure that it continues to be investigated here and outside of Spain.
PATIENT REGISTRATION
We believe that it is important that the registry be worldwide,
for better coordination and use of resources.
Give him life!
Day-to-day of the foundation
February 29, International Day of Rare Diseases
On World Rare Disease Day, we raise our voices to shed light on collagen VI…
Fundación Noelia has received support from the “la Caixa” Foundation, through CaixaBank
Noelia Children's Foundation against congenital muscular dystrophy due to Collagen VI deficiency has received support…
New contribution to Dr. Bönnemann’s team
Thanks to you, Fundación Noelia, achieves one of its goals for 2023 and donates $120,000…
New contribution to research
This month of July 2023, from Fundacion Noelia we have delivered the €38,095 that allow…
News and Events
A toast to research! Last Saturday, December 14, the Celler Mas Vicenç de Cabra del…
On May 18, 19 and 20, the “Mussel Solidarity” campaign organized by Fangar Explotaciones Marítimas…
On May 6, the parents' theater group of the Stella Maris la Gavia School performed…
The multinational Jabil from its office in Tortosa (Tarragona), and on the occasion of its…
Research Projects
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Noelia Foundation official song
¡Dale Fuerza,
Dale Vida!
“Dedicated to the History of Noelia Foundation and all Collagen VI families”
From the singer-songwriter, José Luis Caballero. November 2018
Give solidarity. Give research minutes.
Give the Noelia Foundation.
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