Conference on Rare and Complex Diseases

Noelia Foundation participates in the Conference on Rare and Complex Diseases at the Hospital Sant Joan de Déu in Barcelona

Last February 27, 2020, the Conference on Rare and Complex Diseases and 1st Exhibition of Patients’ Associations was held, organized and hosted by the Hospital de Sant Joan de Déu Research Institute (IRSJD) and the Institute of Bioengineering of Catalonia (IBEC), in collaboration with the Spanish Nanomedicine Platform (NANOMED Spain).

In this exceptional framework, and as the only representative of patient associations, Noelia Foundation had the opportunity to present its project, given the relevant role it plays and the direct impact it generates, despite its modest size, in the advance of research in Collagen VI Congenital Muscular Dystrophy.

Here you have a summary.