Noelia Children's Foundation against congenital muscular dystrophy due to Collagen VI deficiency has received support…
In Noelia Foundation we continue with the research projects, despite the current difficulties caused by COVID-19.
We have held the annual meeting, to follow the evolution of the research projects financed by the Noelia Foundation, and to know the next objectives to be achieved.
The first meeting was last May, with the research team of the HSJD of Barcelona, where Dr. Jiménez, Dr. Nascimento, Dr. Natera and Dr. López were present.
The second meeting, Noelia Foundation and Cure CMD, we met with the NIH/NINDS research team in the United States, where Dr. C. Bönnemann, Dr. R. Foley, Dr. V. Bolduc, Dr. A. Brull were present.
The good news is that, despite the current situation, research projects continue and with very good expectations for the future for those affected collagen VI.