Yesterday, on the occasion of the international day for rare diseases, the Bakers PCB group promoted a charity cake sale at the Barcelona Science Park. Thanks to this action, they managed to raise €818 that will be allocated to the…
On the occasion of rare disease day, Nuria Gaseni, one of those affected by CMD due to Collagen VI deficiency, was interviewed on the SER chain. [Interview in Catalan] https://youtu.be/cEX47Ok3DYQ
Run or walk for Collagen VI Deficiency Congenital Muscular Dystrophy! Sunday March 26, 100% solidarity race: 10 km, 5 km, 600 m. The full amount of the inscriptions will go to the investigation of Muscular Dystrophy due to collagen VI…
We need your help! It all adds up! These funds will make it possible to continue giving continuity to the research projects of collagen6, of the HSJD of Barcelona (Dra.Mallabrera), of the NIH research center in the USA (Dr Bönnemann)…
We continue to add support from our families. Today it comes to us from Argentina. We want to thank Donatto's parents from the bottom of our hearts for their contribution of €1,768 obtained through their campaign to collect solidarity cans…
FNIH (The Foundation for the National Institutes of Health) has recently published an article titled “A Legacy Gift with Lasting Impact”. This article is illustrated with a photograph of Dr. Carsten Bönnemann accompanied by representatives of Fundación Noelia: Noelia Canela…
After opening the second solidarity piggy bank at the Obrador AsuaBerri in Sarriko (Bilbao), we added €732.49, which will be fully allocated to the investigation of the DMC due to a deficiency of Collagen VI. This initiative was launched last…
One more year, from the Hospital Sant Joan de Déu Barcelona, they present us with the seal of entity "Donor 2023 HSJD ". This seal is awarded annually to the foundations and patient associations that most collaborate with the hospital…
Fundación Noelia makes the second contribution of $12,500 to the project led by Dr.Bönneman's team at the NIH (USA) "Optimization of viral vectors for the effective gene delivery to muscle tissue cells". This is a fundamental project to be able…
Closing the year it is time to do the numbers and see what this 2022 has given. From Fundación Noelia we have invested €173,853.49 during 2022 in the research of Congenital Muscular Dystrophy caused by dèficit in Collagen VI, specifically…
