In a recent article, Biopharma Reporter magazine highlights the significant advances that have occurred in recent years in the field of gene therapy, transforming it from a futuristic promise to a concrete reality with treatments already available. These represent a…
On World Rare Disease Day, we raise our voices to shed light on collagen VI congenital muscular dystrophy and all rare medical conditions. At the Noelia Foundation we participate in different events to make the disease visible: II Conference on…
Noelia Children's Foundation against congenital muscular dystrophy due to Collagen VI deficiency has received support from the “la Caixa” Foundation, through CaixaBank, to promote the “You are not alone” project, which aims to promote a virtual community of affected and…
Thanks to you, Fundación Noelia, achieves one of its goals for 2023 and donates $120,000 to Dr. Bönnemann's team, from the National Institute of Neurological Disease and Stroke, in the USA, a project that establishes two gene therapies based on…
Fundación Noelia has organized the I Collagen VI International Research Summit in San Sebastián, Basque Country, Spain, marking a milestone by being the first dedicated exclusively to Col6 in Europe. More than 50 leading participants, including researchers and clinicians from…
Radio Onda Vasca: With Txema Gutierrez (27-11-2023 ) Interview in Onda Vasca on the occasion of the Collagen VI International Research Summit https://youtu.be/BQKueqhGg1o Web Onda Vasca (27-11-2023 ) News published on the Onda Vasca website on the occasion of the…
This month of July 2023, from Fundacion Noelia we have delivered the €38,095 that allow us to continue with the research project PERSONALIZED MEDICINE THERAPIES FOR CONGENITAL MUSCULAR DYSTROPHIES. This 2-year project is carried out at the Sant Joan de…
Last April we visited the Biocruces Health Research Institute in Bizkaia, where Fundación Noelia financed the research project "Evaluation and development of personalized therapies for collagen vi-related myopathies", led by Dr. Virginia Arechavala. Within the framework of the collaboration agreement,…
On May 18, 19 and 20, the “Mussel Solidarity” campaign organized by Fangar Explotaciones Marítimas took place. This campaign was carried out in the Caprabo, Spar, Plus Fresc and Condis supermarkets in Catalonia, where for every kilo of mussels sold,…
On May 6, the parents' theater group of the Stella Maris la Gavia School performed the play "Return to Neverland". In one of the shows, the box office proceeds went to Fundación Noelia after the proposal of Sergio and María,…
