On World Rare Disease Day, we raise our voices to shed light on collagen VI…
Making the disease visible: Camarles Institute
From Fundación Noelia we continue to make #NeuromuscularDiseases visible, and specifically to the DMC due to collagen VI deficiency.
On this occasion, and within the framework of 15N (Day of Neuromuscular Diseases) we visited the Camarles Institute where Noelia and Adriá explained to the students of 1st ESO what the disease consists of and what their day-to-day life is like.