Inauguración de la sede en Barcelona de EURORDIS

marzo 31, 2016
Día a día Fundación

La Fundación Noelia, estuvimos presentes el día 31 Marzo 2016 en la inauguración de la sede en Barcelona de EURORDIS (Organización Europea de Enfermedades Raras) en el Recinto Modernista del Hospital de Santa Creu y Sant Pau. EURORDIS ocupará el Pabellón de Santa Apol·lònia.

Esta entidad es una organización no gubernamental dirigida por una alianza de pacientes, representa a más de 700 organizaciones de pacientes de enfermedades minoritarias de 63 países diferentes. EURORDIS, pues, es la voz de 30 millones de personas del continente.

Aquí tenéis más información.

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