On World Rare Disease Day, we raise our voices to shed light on collagen VI…
Opening of the EURORDIS headquarters in Barcelona
Noelia Foundation was present on 31 March 2016 at the opening of the EURORDIS headquarters in Barcelona (European Organisation for Rare Diseases) in the modernist enclosure of Hospital Santa Creu and Sant Pau. EURORDIS will be located at Apolonia’s Pavilion.
This entity is a non-governmental organization led by an alliance of patients, representing more than 700 patient organizations of rare diseases in 63 different countries. For this reason, EURORDIS represents the voice of 30 million people on the continent.
You can find further information here.