III Jornada Informativa para pacientes y familiares con Enfermedades Neuromusculares

julio 18, 2016
Día a día Fundación

El pasado sábado 16 Julio, la Fundación Noelia, niños contra la DMC por déficit de colágeno VI, participamos en la III Jornada Informativa para pacientes y familiares con Enfermedades Neuromusculares que organiza el Hospital San Joan de Déu.

Fueron unas Jornadas muy esperanzadoras para todos nosotros, ya que la investigación avanza, nuestros profesionales están muy implicados y vimos realmente que la ayuda de las familias es de gran valor.

Tuvimos la oportunidad de conocer a dos familias increíbles, afectadas con ésta enfermedad y fue un placer compartir con ellos ése día.

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