We introduce you to Anna Serradell Salís, a new member of the scientific team at Hospital Sant Joan de Déu Barcelona. Anna joins as a pre-doctoral researcher to support the CRISPR Collagen VI project in which Dr. Cecilia Jimenez-Mallebrera and…
The Camarles Town Hall gives us one more year of €1,500. The entire donation will go to research into Congenital Muscular Dystrophy due to #CollagenoVI deficiency. From Fundación Noelia we will always be immensely grateful to #Camarles, its town hall…
The CEIP Eduardo Sanchiz, from Tarazona la Mancha, in Albacete, joins forces to contribute to the investigation of Muscular Dystrophy due to collagen VI deficiency, a disease suffered by Beltran, one of his students. His colleagues ran for him and…
Yesterday, on the occasion of the international day for rare diseases, the Bakers PCB group promoted a charity cake sale at the Barcelona Science Park. Thanks to this action, they managed to raise €818 that will be allocated to the…
We continue to add support from our families. Today it comes to us from Argentina. We want to thank Donatto's parents from the bottom of our hearts for their contribution of €1,768 obtained through their campaign to collect solidarity cans…
FNIH (The Foundation for the National Institutes of Health) has recently published an article titled “A Legacy Gift with Lasting Impact”. This article is illustrated with a photograph of Dr. Carsten Bönnemann accompanied by representatives of Fundación Noelia: Noelia Canela…
After opening the second solidarity piggy bank at the Obrador AsuaBerri in Sarriko (Bilbao), we added €732.49, which will be fully allocated to the investigation of the DMC due to a deficiency of Collagen VI. This initiative was launched last…
One more year, from the Hospital Sant Joan de Déu Barcelona, they present us with the seal of entity "Donor 2023 HSJD ". This seal is awarded annually to the foundations and patient associations that most collaborate with the hospital…
In Navarra, over the last few months, different events and actions have been carried out with which 3,025 euros have been raised in favor of the Noelia Foundation. In Etxauri a racquetball championship was organized in which a raffle was…
La Caixa has made a donation of €3,000 for the social project "You are not alone" developed by Fundación Noelia. This donation allows us to promote the "You are not alone" project aimed at the social and emotional well-being of…
