Fundación Noelia reaffirms its commitment to promoting and supporting scientific research aimed at understanding, treating, and ultimately curing Collagen VI Related Congenital Muscular Dystrophy (COL6-CMD). In this context, participation in international initiatives is essential to accelerate progress in the field.…
Yesterday, we bid a final farewell to Josep Maria Canela (l’Agustí), co-founder of the Noelia Foundation. We will always remember him with great esteem and gratitude; his legacy will remain alive in every step we take. We extend our deepest…
On March 7, 2025, the Fundación Noelia had the honor of participating in the Nano Rare Diseases Day, held at the Auditorio Plaza of the Sant Joan de Déu University Hospital in Barcelona. This event, organized as part of World…
The Fundación Noelia has funded an innovative study led by researcher Virginia Arechavala-Gomeza, which takes a step forward in the diagnosis and development of treatments for Congenital Muscular Dystrophy due to Collagen Deficiency VI (CMD COL6). Researchers have created a…
Last December, thanks to the incredible solidarity of so many people, the "Together we make magic, through the power of children" challenge was a resounding success. With the collaboration of magician Albert, the Fortuny Theater in Reus was filled with…
The Importance of Patient Participation in Rare Disease Research This event, organized by FEDER (Spanish Federation of Rare Diseases), focused on the crucial role of patient participation in research. The roundtable discussion, "Patient Participation in the Research Process," featured Dr.…
On May 18, 19 and 20, the “Mussel Solidarity” campaign organized by Fangar Explotaciones Marítimas took place. This campaign was carried out in the Caprabo, Spar, Plus Fresc and Condis supermarkets in Catalonia, where for every kilo of mussels sold,…
On May 6, the parents' theater group of the Stella Maris la Gavia School performed the play "Return to Neverland". In one of the shows, the box office proceeds went to Fundación Noelia after the proposal of Sergio and María,…
The multinational Jabil from its office in Tortosa (Tarragona), and on the occasion of its Christmas meal, and within the day's playful agenda, organized a MasterChef among its employees. The activity, logically, consisted of a cooking competition in which the…
On May 16, the “Dell Technologies Channel Vision” event organized by Bell Comunicación took place in Madrid, in which the Noelia Foundation was present. As the culmination of the event, each attendee received a gift from Dell Technologies. On this…
