The YKK Sports Team finished the Barcelona Marathon! They ran 42 km for Collagen VI Congenital Muscular Dystrophy, under the slogan "Run For Hope". Some Collagen VI- CMD families did not want to miss it and came to welcome them…
The Exhibition Rare Artists, which took place on February 27th and 28th, in Uruguay, was a success thanks to Valentino’s parents, who represented the Noelia Foundation on the International Day of Rare Diseases, and their friends. We also want to…
We are pleased to share with all of you, that in the 1st Fundraising Dinner Supporting the Noelia Foundation in Madrid, 34.265,52€ were raised. We would like to thank “Grandes Chefs” their cooperation in the event, as well as all…
This year the Dueke Goethe Executive MBA 2009 annual reunion took place in Hamburg, Germany. In the event, they organized a tombola to support Fundación Noelia: Children against Congenital Muscular Dystrophy due to the lack of Collagen VI and collected…
On Sunday 29th November we attended the Mercat del Trasto market in Barberà. We also sold our solidarity products and raffled some items; the winning numbers were: • Alabaster pestle and mortar: 1131 (we already have the picture with the winner)…
The hospital porters of Tarragona’s Joan XXIII Hospital organised a paddle tennis tournament that took place on the afternoon of the 14th of November. The participants in the tournament cooperated with us by purchasing 36 T-shirts. We would like to…
On the 24th of October 2015, in Mataró, the members of the circus Cronopis organised a charitable cabaret to raise funds for our foundation. We met great artists and enjoyed a wonderful show. We would like to thank all the artists…
On the 4th of October 2015, SOSciathlon organised a fundraising day at La Pineda, which consisted of a series of leisure and sportive activities that took place throughout the morning. All funds raised will go to the foundation Fundació Josep…
On the weekend of the 26th - 27th of September we took part in a congress hosted by Muscular Dystrophy UK in London. Speakers at the congress included researchers who study different kinds of muscular dystrophy and also affected families.…
