On May 16, the “Dell Technologies Channel Vision” event organized by Bell Comunicación took place in Madrid, in which the Noelia Foundation was present. As the culmination of the event, each attendee received a gift from Dell Technologies. On this…
We introduce you to Anna Serradell Salís, a new member of the scientific team at Hospital Sant Joan de Déu Barcelona. Anna joins as a pre-doctoral researcher to support the CRISPR Collagen VI project in which Dr. Cecilia Jimenez-Mallebrera and…
Based on the good results obtained in the previous phase, Fundación Noelia has signed a new agreement with the Hospital Sant Joan de Déu in Barcelona to continue the next phase of the CRISPR project. We are at a time…
The Camarles Town Hall gives us one more year of €1,500. The entire donation will go to research into Congenital Muscular Dystrophy due to #CollagenoVI deficiency. From Fundación Noelia we will always be immensely grateful to #Camarles, its town hall…
The CEIP Eduardo Sanchiz, from Tarazona la Mancha, in Albacete, joins forces to contribute to the investigation of Muscular Dystrophy due to collagen VI deficiency, a disease suffered by Beltran, one of his students. His colleagues ran for him and…
One more year, the solidarity concert of The Tutsies arrives for the benefit of Fundación Noelia. We need your support to be able to continue financing research in search of a treatment for this disease that, to this day, has…
Last Sunday, March 26, the III Fundación Noelia Solidarity Race was held in Camarles. It was a day full of emotions, where, on this occasion, more than 250 people left their mark for collagen VI, but Marc, Alejandro and Pau…
On February 25, a new information session was held aimed at families and affected by collagen VI, where a summary of all the activities carried out during the past year 2022 was made, in order to continue meeting the objectives…
Yesterday, on the occasion of the international day for rare diseases, the Bakers PCB group promoted a charity cake sale at the Barcelona Science Park. Thanks to this action, they managed to raise €818 that will be allocated to the…
On the occasion of rare disease day, Nuria Gaseni, one of those affected by CMD due to Collagen VI deficiency, was interviewed on the SER chain. [Interview in Catalan] https://youtu.be/cEX47Ok3DYQ
