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Day-to-day of the foundation

COL6 DAY: EVirtual Event

On June 6th, the first virtual edition of COL6 DAY took place, an event organized…

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New advance in the research of Congenital Muscular Dystrophy due to Collagen Deficiency VI (CMD COL6)

The Fundación Noelia has funded an innovative study led by researcher Virginia Arechavala-Gomeza, which takes…

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Conference on Rare Disease Research Organized by FEDER

The Importance of Patient Participation in Rare Disease Research This event, organized by FEDER (Spanish…

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February 29, International Day of Rare Diseases

On World Rare Disease Day, we raise our voices to shed light on collagen VI…

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Fundación Noelia has received support from the “la Caixa” Foundation, through CaixaBank

Noelia Children's Foundation against congenital muscular dystrophy due to Collagen VI deficiency has received support…

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New contribution to Dr. Bönnemann’s team

Thanks to you, Fundación Noelia, achieves one of its goals for 2023 and donates $120,000…

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New contribution to research

This month of July 2023, from Fundacion Noelia we have delivered the €38,095 that allow…

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Visit to Biocruces

Last April we visited the Biocruces Health Research Institute in Bizkaia, where Fundación Noelia financed…

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We continue betting on research!

Based on the good results obtained in the previous phase, Fundación Noelia has signed a…

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FN 2023 objective: €237,000 for research

We need your help! It all adds up! These funds will make it possible to…

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$12,500 to continue supporting research

Fundación Noelia makes the second contribution of $12,500 to the project led by Dr.Bönneman's team…

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€173,853 invested in research in 2022

Closing the year it is time to do the numbers and see what this 2022…

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