On July 20, like every year, the Blanc i Blava fan group from Mora la Nova gived us its annual donation. Thank you very much for continuing to help our cause and adding minutes of research.
After 6 years we have to put an END to our Solidarity lids Collection campaign. The collection of solidarity lids has been a campaign that helped us a lot in our beginnings and with which over the years it has…
Almost 300 businessmen and professionals from the tourism sector have celebrated the first Night of the Stars organized by the Tarragona Province Hospitality and Tourism Business Federation (FEHT). During the evening, the Costa Daurada Tourist Charity Association carried out a…
The charity concert of the gospel group Living Water took place on Jan. 11th and 12th, in Reus and Amposta, respectively, with an tremendous success, gathering over …. people and hanging the “sold out” sign in La Lira Ampostina Theatre.…
On March 21, 1919, the novelties were published on the "in vitro" works in patient cells (fibroblasts), using the "pseudo" exon skipping technique. Among the authors, there are the most important experts on Collagen VI worldwide, such as Dr.Bönnemann and…
Source of information: Tac12 Valls
Today, April 1, CaixaBank and Noelia Foundation, have presented the crowdfunding campaign, in a press conference, in order to raise awareness of this initiative, which will take place throughout the month of April. Collaborate here!!
Fabulous concert by Marta Gómez, dedicated to those affected by Congenital Muscular Dystrophy due to collagen deficiency VI, in the beautiful Sala Milano in Barcelona. Last March 14, Marta Gómez, presented of her new album "La Alegría del Canto" managed…
The YKK Sports Team finished the Barcelona Marathon! They ran 42 km for Collagen VI Congenital Muscular Dystrophy, under the slogan "Run For Hope". Some Collagen VI- CMD families did not want to miss it and came to welcome them…
The Exhibition Rare Artists, which took place on February 27th and 28th, in Uruguay, was a success thanks to Valentino’s parents, who represented the Noelia Foundation on the International Day of Rare Diseases, and their friends. We also want to…
