Last week, delegates of Fundación Noelia attended the 2022 edition of the SciFam Meeting 2022 by CureCMD in Nashville, Tennessee (USA). At the event, leading members of the research community presented their results and discussed with fellow scientists about the…
On June 10, 11 and 12, 2022, the I Scientific and Family Meeting Muscular Dystrophy Collagen VI took place virtually, organized by the Noelia Foundation. During the first two days, scientific and clinical issues were discussed, while the last day…
On February 23rd, 2021, we participated in one of the seminars organized by ASEM Catalonia: COVID-19 vaccine and neuromuscular diseases, a virtual lecture given by Dr. Olivé, neurologist at Sant Pau University Hospital and Dr. Natera, neuropediatrician at the Sant…
In recent years, news have emerged from time to time that point to the potential benefit of some drugs for congenital muscular dystrophy patients. Although they do not hope to cure the disease, these drugs do seek to alleviate the…
Fundación Noelia and the National Institute of Neurological Disorders and Stroke (NINDS) in the US have just signed a collaboration agreement by which Fundación Noelia will fund a new research project led by Dr. Carsten Bönnemann, with a total contribution…
In Noelia Foundation we continue with the research projects, despite the current difficulties caused by COVID-19. We have held the annual meeting, to follow the evolution of the research projects financed by the Noelia Foundation, and to know the next…
Noelia Foundation participates in the Conference on Rare and Complex Diseases at the Hospital Sant Joan de Déu in Barcelona Last February 27, 2020, the Conference on Rare and Complex Diseases and 1st Exhibition of Patients' Associations was held, organized…
One more year Noelia Foundation present in the Day of families with Neuromuscular Diseases, organized by the NRM team of the Sant Juan de Dios Hospital in Barcelona. These have been very rewarding days, since we have seen that the…
The Hospital Sant Joan de Déu, in Barcelona, echoes the new donation of the Noelia Foundation to continue financing the research project "NATURAL HISTORY, DIAGNOSIS AND TREATMENT OF COLLAGEN VI-RELATED MUSCULAR DYSTROPHIES", which enters its second phase of action. Read…
Last July, Noelia Foundation attended the 2019 Congenital Muscle Disease Scientific & Family Conference organized in Chicago by Cure CMD, an event that brought together researchers from around the world to share their experience on these congenital diseases. Once again,…
