#CollagenVI News
STAY UP TO DATE WITH ALL THE NEWS ABOUT CONGENITAL MUSCULAR DYSTROPHY DUE TO COLLAGEN VI DEFICIENCY..
Here you will find a summary of each of the conferences and congresses that Fundación Noelia attends and the most important articles about Collagen VI.
Fundación Noelia at the Nano Rare Diseases Day 2025: Advancing Research in Nanomedicine
On March 7, 2025, the Fundación Noelia had the honor of participating in the Nano…
New advance in the research of Congenital Muscular Dystrophy due to Collagen Deficiency VI (CMD COL6)
The Fundación Noelia has funded an innovative study led by researcher Virginia Arechavala-Gomeza, which takes…
Article published by Dr. Astrid Brull
Below we leave you the article published by Dr. Astrid Brull, Member of the NINDS-NIH…
Gene therapies are no longer a dream
In a recent article, Biopharma Reporter magazine highlights the significant advances that have occurred in…
Informative session for families and those affected by collagen VI
On February 25, a new information session was held aimed at families and affected by…
9th Information Conference for Patients and Families with Neuromuscular Diseases.
On November 26, the FN team participated for another year in the 9th Information Conference…
VI Scientific Meeting of Collagene VI Italia APS
Noelia Foundation participates in the VI Scientific Meeting of the Italian association of DMC-Col6 patients,…
Fundación Noelia participates in a new edition of CureCMD’s Science & Family Meeting on Congenital Muscular Dystrophies
Last week, delegates of Fundación Noelia attended the 2022 edition of the SciFam Meeting 2022…
Collagen VI Meeting 2022
On June 10, 11 and 12, 2022, the I Scientific and Family Meeting Muscular Dystrophy…
COVID-19 VACCINES AND NEUROMUSCULAR DISEASES, 23
On February 23rd, 2021, we participated in one of the seminars organized by ASEM Catalonia:…
An update on potential adjuvant therapies in Collagen VI CMD: Alisporivir, Givinostat and Omigapil
In recent years, news have emerged from time to time that point to the potential…
Conference on Rare and Complex Diseases
Noelia Foundation participates in the Conference on Rare and Complex Diseases at the Hospital Sant…