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#CollagenVI News

STAY UP TO DATE WITH ALL THE NEWS ABOUT CONGENITAL MUSCULAR DYSTROPHY DUE TO COLLAGEN VI DEFICIENCY..

Here you will find a summary of each of the conferences and congresses that Fundación Noelia attends and the most important articles about Collagen VI.

Fundación Noelia at the Nano Rare Diseases Day 2025: Advancing Research in Nanomedicine

On March 7, 2025, the Fundación Noelia had the honor of participating in the Nano…

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New advance in the research of Congenital Muscular Dystrophy due to Collagen Deficiency VI (CMD COL6)

The Fundación Noelia has funded an innovative study led by researcher Virginia Arechavala-Gomeza, which takes…

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Article published by Dr. Astrid Brull

Below we leave you the article published by Dr. Astrid Brull, Member of the NINDS-NIH…

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Gene therapies are no longer a dream

In a recent article, Biopharma Reporter magazine highlights the significant advances that have occurred in…

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Informative session for families and those affected by collagen VI

On February 25, a new information session was held aimed at families and affected by…

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9th Information Conference for Patients and Families with Neuromuscular Diseases.

On November 26, the FN team participated for another year in the 9th Information Conference…

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VI Scientific Meeting of Collagene VI Italia APS

Noelia Foundation participates in the VI Scientific Meeting of the Italian association of DMC-Col6 patients,…

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Fundación Noelia participates in a new edition of CureCMD’s Science & Family Meeting on Congenital Muscular Dystrophies

Last week, delegates of Fundación Noelia attended the 2022 edition of the SciFam Meeting 2022…

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Collagen VI Meeting 2022

On June 10, 11 and 12, 2022, the I Scientific and Family Meeting Muscular Dystrophy…

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COVID-19 VACCINES AND NEUROMUSCULAR DISEASES, 23

On February 23rd, 2021, we participated in one of the seminars organized by ASEM Catalonia:…

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An update on potential adjuvant therapies in Collagen VI CMD: Alisporivir, Givinostat and Omigapil

In recent years, news have emerged from time to time that point to the potential…

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Conference on Rare and Complex Diseases

Noelia Foundation participates in the Conference on Rare and Complex Diseases at the Hospital Sant…

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