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Forever with us, Josep Maria

Yesterday, we bid a final farewell to Josep Maria Canela (l’Agustí), co-founder of the Noelia…

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COL6 DAY: EVirtual Event

On June 6th, the first virtual edition of COL6 DAY took place, an event organized…

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Fundación Noelia at the Nano Rare Diseases Day 2025: Advancing Research in Nanomedicine

On March 7, 2025, the Fundación Noelia had the honor of participating in the Nano…

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New advance in the research of Congenital Muscular Dystrophy due to Collagen Deficiency VI (CMD COL6)

The Fundación Noelia has funded an innovative study led by researcher Virginia Arechavala-Gomeza, which takes…

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Together we make magic: a challenge made reality.

Last December, thanks to the incredible solidarity of so many people, the "Together we make…

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Celler Mas Vicenç and Noelia Foundation: An alliance for health

A toast to research! Last Saturday, December 14, the Celler Mas Vicenç de Cabra del…

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Conference on Rare Disease Research Organized by FEDER

The Importance of Patient Participation in Rare Disease Research This event, organized by FEDER (Spanish…

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February 29, International Day of Rare Diseases

On World Rare Disease Day, we raise our voices to shed light on collagen VI…

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Fundación Noelia has received support from the “la Caixa” Foundation, through CaixaBank

Noelia Children's Foundation against congenital muscular dystrophy due to Collagen VI deficiency has received support…

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New contribution to Dr. Bönnemann’s team

Thanks to you, Fundación Noelia, achieves one of its goals for 2023 and donates $120,000…

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In the media: Collagen VI International Summit 2023

Radio Onda Vasca: With Txema Gutierrez (27-11-2023 ) Interview in Onda Vasca on the occasion…

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New contribution to research

This month of July 2023, from Fundacion Noelia we have delivered the €38,095 that allow…

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