Forever with us, Josep Maria
Yesterday, we bid a final farewell to Josep Maria Canela (l’Agustí), co-founder of the Noelia…
COL6 DAY: EVirtual Event
On June 6th, the first virtual edition of COL6 DAY took place, an event organized…
Fundación Noelia at the Nano Rare Diseases Day 2025: Advancing Research in Nanomedicine
On March 7, 2025, the Fundación Noelia had the honor of participating in the Nano…
New advance in the research of Congenital Muscular Dystrophy due to Collagen Deficiency VI (CMD COL6)
The Fundación Noelia has funded an innovative study led by researcher Virginia Arechavala-Gomeza, which takes…
Together we make magic: a challenge made reality.
Last December, thanks to the incredible solidarity of so many people, the "Together we make…
Celler Mas Vicenç and Noelia Foundation: An alliance for health
A toast to research! Last Saturday, December 14, the Celler Mas Vicenç de Cabra del…
Conference on Rare Disease Research Organized by FEDER
The Importance of Patient Participation in Rare Disease Research This event, organized by FEDER (Spanish…
February 29, International Day of Rare Diseases
On World Rare Disease Day, we raise our voices to shed light on collagen VI…
Fundación Noelia has received support from the “la Caixa” Foundation, through CaixaBank
Noelia Children's Foundation against congenital muscular dystrophy due to Collagen VI deficiency has received support…
New contribution to Dr. Bönnemann’s team
Thanks to you, Fundación Noelia, achieves one of its goals for 2023 and donates $120,000…
In the media: Collagen VI International Summit 2023
Radio Onda Vasca: With Txema Gutierrez (27-11-2023 ) Interview in Onda Vasca on the occasion…
New contribution to research
This month of July 2023, from Fundacion Noelia we have delivered the €38,095 that allow…