At the SER the Day of Rare Diseases
On the occasion of rare disease day, Nuria Gaseni, one of those affected by CMD due to Collagen VI deficiency, was interviewed on the SER chain. [Interview in Catalan] https://youtu.be/cEX47Ok3DYQ
2023.03.01
Gospel Living Water in concert: a huge success
The charity concert of the gospel group Living Water took place on Jan. 11th and 12th, in Reus and Amposta, respectively, with an tremendous success, gathering over …. people and hanging the “sold out” sign in La Lira Ampostina Theatre.…
2020.01.16
Fundación Noelia makes a new donation of € 44,000
The Hospital Sant Joan de Déu, in Barcelona, echoes the new donation of the Noelia Foundation to continue financing the research project "NATURAL HISTORY, DIAGNOSIS AND TREATMENT OF COLLAGEN VI-RELATED MUSCULAR DYSTROPHIES", which enters its second phase of action. Read…
2019.07.30