Radio Onda Vasca: With Txema Gutierrez (27-11-2023 ) Interview in Onda Vasca on the occasion of the Collagen VI International Research Summit https://youtu.be/BQKueqhGg1o Web Onda Vasca (27-11-2023 ) News published on the Onda Vasca website on the occasion of the…
On the occasion of rare disease day, Nuria Gaseni, one of those affected by CMD due to Collagen VI deficiency, was interviewed on the SER chain. [Interview in Catalan] https://youtu.be/cEX47Ok3DYQ
The charity concert of the gospel group Living Water took place on Jan. 11th and 12th, in Reus and Amposta, respectively, with an tremendous success, gathering over …. people and hanging the “sold out” sign in La Lira Ampostina Theatre.…
The Hospital Sant Joan de Déu, in Barcelona, echoes the new donation of the Noelia Foundation to continue financing the research project "NATURAL HISTORY, DIAGNOSIS AND TREATMENT OF COLLAGEN VI-RELATED MUSCULAR DYSTROPHIES", which enters its second phase of action. Read…
