Fundación Noelia, for children suffering Congenital Muscular Dystrophy (CMD) caused by deficit in collagen VI, with NIH (NINDS) National Institute of Health from United Estates have signed a collaboration agreement to get further with the investigation about CMD caused by…
Noelia Foundation was present on 31 March 2016 at the opening of the EURORDIS headquarters in Barcelona (European Organisation for Rare Diseases) in the modernist enclosure of Hospital Santa Creu and Sant Pau. EURORDIS will be located at Apolonia’s Pavilion.…
On the weekend of the 26th - 27th of September we took part in a congress hosted by Muscular Dystrophy UK in London. Speakers at the congress included researchers who study different kinds of muscular dystrophy and also affected families.…
