{"id":20318,"date":"2017-11-02T00:00:00","date_gmt":"2017-11-02T00:00:00","guid":{"rendered":"https:\/\/fundacionnoelia.org\/actualidad\/noelia-foundation-recognized-by-orphanet\/"},"modified":"2022-05-09T11:22:18","modified_gmt":"2022-05-09T11:22:18","slug":"noelia-foundation-recognized-by-orphanet","status":"publish","type":"post","link":"https:\/\/fundacionnoelia.org\/en\/actualidad\/noelia-foundation-recognized-by-orphanet\/","title":{"rendered":"Noelia Foundation recognized by Orphanet"},"content":{"rendered":"<p style=\"text-align: justify;\"><strong>Noelia Foundation, children against Collagen-VI Muscular Dystrophy<\/strong>, has been recognized as a representative entity of this pathology in the database of <a href=\"http:\/\/www.orpha.net\/consor\/cgi-bin\/index.php\" target=\"_blank\" rel=\"noopener\"><strong>Orphanet<\/strong><\/a>\u00a0(The portal for rare diseases and orphan drugs). <strong>Orphanet<\/strong>\u00a0was established in France by the <strong><a href=\"https:\/\/www.inserm.fr\" target=\"_blank\" rel=\"noopener\">INSERM<\/a><\/strong>\u00a0(French National Institute for Health and Medical Research) in 1997.This initiative became a European endeavour from 2000, supported by grants from the European Commission: <strong>Orphanet<\/strong> has gradually grown to a Consortium of 40 countries, within Europe and across the globe.<\/p>\n<p style=\"text-align: justify;\"><strong><a href=\"http:\/\/www.orpha.net\/consor\/cgi-bin\/SupportGroup_Search.php?lng=ES&amp;data_id=123832\" target=\"_blank\" rel=\"noopener\">See file Noelia Foundation.<\/a><\/strong><\/p>\n<p><!--more--><\/p>\n","protected":false},"excerpt":{"rendered":"<p>Noelia Foundation, children against Collagen-VI Muscular Dystrophy, has been recognized as a representative entity of this pathology in the database of Orphanet\u00a0(The portal for rare diseases and orphan drugs). Orphanet\u00a0was established in France by the INSERM\u00a0(French National Institute for Health and Medical Research) in 1997.This initiative became a European endeavour from 2000, supported by grants&hellip;<\/p>\n","protected":false},"author":1,"featured_media":3525,"comment_status":"closed","ping_status":"closed","sticky":false,"template":"","format":"standard","meta":{"footnotes":""},"categories":[113],"tags":[],"post_series":[],"class_list":["post-20318","post","type-post","status-publish","format-standard","has-post-thumbnail","hentry","category-day-to-day-fundation","entry","has-media"],"yoast_head":"<!-- This site is optimized with the Yoast SEO plugin v27.2 - https:\/\/yoast.com\/product\/yoast-seo-wordpress\/ -->\n<title>Noelia Foundation recognized by Orphanet - Fundaci\u00f3n Noelia<\/title>\n<meta name=\"robots\" content=\"index, follow, max-snippet:-1, max-image-preview:large, max-video-preview:-1\" \/>\n<link rel=\"canonical\" href=\"https:\/\/fundacionnoelia.org\/en\/actualidad\/noelia-foundation-recognized-by-orphanet\/\" \/>\n<meta property=\"og:locale\" content=\"en_US\" \/>\n<meta property=\"og:type\" content=\"article\" \/>\n<meta property=\"og:title\" content=\"Noelia Foundation recognized by Orphanet - Fundaci\u00f3n Noelia\" \/>\n<meta property=\"og:description\" content=\"Noelia Foundation, children against Collagen-VI Muscular Dystrophy, has been recognized as a representative entity of this pathology in the database of Orphanet\u00a0(The portal for rare diseases and orphan drugs). Orphanet\u00a0was established in France by the INSERM\u00a0(French National Institute for Health and Medical Research) in 1997.This initiative became a European endeavour from 2000, supported by grants&hellip;\" \/>\n<meta property=\"og:url\" content=\"https:\/\/fundacionnoelia.org\/en\/actualidad\/noelia-foundation-recognized-by-orphanet\/\" \/>\n<meta property=\"og:site_name\" content=\"Fundaci\u00f3n Noelia\" \/>\n<meta property=\"article:published_time\" content=\"2017-11-02T00:00:00+00:00\" \/>\n<meta property=\"article:modified_time\" content=\"2022-05-09T11:22:18+00:00\" \/>\n<meta property=\"og:image\" content=\"https:\/\/fundacionnoelia.org\/wp-content\/uploads\/2017\/11\/logo-orphanet.jpg\" \/>\n\t<meta property=\"og:image:width\" content=\"900\" \/>\n\t<meta property=\"og:image:height\" content=\"600\" \/>\n\t<meta property=\"og:image:type\" content=\"image\/jpeg\" \/>\n<meta name=\"author\" content=\"admin\" \/>\n<meta name=\"twitter:card\" content=\"summary_large_image\" \/>\n<meta name=\"twitter:label1\" content=\"Written by\" \/>\n\t<meta name=\"twitter:data1\" content=\"admin\" \/>\n<script type=\"application\/ld+json\" class=\"yoast-schema-graph\">{\"@context\":\"https:\/\/schema.org\",\"@graph\":[{\"@type\":\"Article\",\"@id\":\"https:\/\/fundacionnoelia.org\/en\/actualidad\/noelia-foundation-recognized-by-orphanet\/#article\",\"isPartOf\":{\"@id\":\"https:\/\/fundacionnoelia.org\/en\/actualidad\/noelia-foundation-recognized-by-orphanet\/\"},\"author\":{\"name\":\"admin\",\"@id\":\"https:\/\/fundacionnoelia.org\/en\/#\/schema\/person\/251bd215dfe4e3e40da6badb9ce8adc8\"},\"headline\":\"Noelia Foundation recognized by Orphanet\",\"datePublished\":\"2017-11-02T00:00:00+00:00\",\"dateModified\":\"2022-05-09T11:22:18+00:00\",\"mainEntityOfPage\":{\"@id\":\"https:\/\/fundacionnoelia.org\/en\/actualidad\/noelia-foundation-recognized-by-orphanet\/\"},\"wordCount\":85,\"publisher\":{\"@id\":\"https:\/\/fundacionnoelia.org\/en\/#organization\"},\"image\":{\"@id\":\"https:\/\/fundacionnoelia.org\/en\/actualidad\/noelia-foundation-recognized-by-orphanet\/#primaryimage\"},\"thumbnailUrl\":\"https:\/\/fundacionnoelia.org\/wp-content\/uploads\/2017\/11\/logo-orphanet.jpg\",\"articleSection\":[\"Day-to-day\"],\"inLanguage\":\"en-US\"},{\"@type\":\"WebPage\",\"@id\":\"https:\/\/fundacionnoelia.org\/en\/actualidad\/noelia-foundation-recognized-by-orphanet\/\",\"url\":\"https:\/\/fundacionnoelia.org\/en\/actualidad\/noelia-foundation-recognized-by-orphanet\/\",\"name\":\"Noelia Foundation recognized by Orphanet - 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