{"id":57799,"date":"2024-07-04T15:42:08","date_gmt":"2024-07-04T15:42:08","guid":{"rendered":"https:\/\/fundacionnoelia.org\/?page_id=57799"},"modified":"2026-04-22T09:57:14","modified_gmt":"2026-04-22T09:57:14","slug":"international-consortium-for-col6-cmd-research","status":"publish","type":"page","link":"https:\/\/fundacionnoelia.org\/en\/research-projects\/international-consortium-for-col6-cmd-research\/","title":{"rendered":"International Consortium for Col6-CMD Research"},"content":{"rendered":"[vc_row][vc_column width=&#8221;1\/6&#8243;][\/vc_column][vc_column width=&#8221;4\/6&#8243;][vc_empty_space]<figure class=\"vcex-image vcex-module wpex-clr textcenter\"><div class=\"vcex-image-inner wpex-relative wpex-inline-block\"><img decoding=\"async\" width=\"900\" height=\"600\" src=\"https:\/\/fundacionnoelia.org\/wp-content\/uploads\/2026\/04\/Consorcio_proyectos-1.png\" class=\"wpex-align-middle\" alt=\"\" loading=\"lazy\" srcset=\"https:\/\/fundacionnoelia.org\/wp-content\/uploads\/2026\/04\/Consorcio_proyectos-1.png 900w, https:\/\/fundacionnoelia.org\/wp-content\/uploads\/2026\/04\/Consorcio_proyectos-1-300x200.png 300w, https:\/\/fundacionnoelia.org\/wp-content\/uploads\/2026\/04\/Consorcio_proyectos-1-768x512.png 768w, https:\/\/fundacionnoelia.org\/wp-content\/uploads\/2026\/04\/Consorcio_proyectos-1-600x400.png 600w\" sizes=\"auto, (max-width: 900px) 100vw, 900px\" \/><\/div><\/figure>[vc_empty_space][vc_column_text]\n<h2 class=\"icon_box_heading\">INTERNATIONAL CONSORTIUM FOR COL6-CMD RESEARCH<\/h2>\n<h4><strong>CREATION OF A INTERNATIONAL CONSORTIUM FOR COL6-CMD RESEARCH<\/strong><\/h4>\n[\/vc_column_text][vc_empty_space][vc_column_text]\n<h3><strong>GRANT CALL FOR START-UP COSTS: INTERNATIONAL CONSORTIUM FOR COL6-CMD RESEARCH<\/strong><\/h3>\n<p>We are excited to announce a grant call to support the start-up costs for the International Consortium for Col6 Research. This grant aims to facilitate the establishment of a collaborative research consortium dedicated to advancing the study and treatment of Collagen 6 Congenital Muscular Dystrophy (Col6-CMD).<\/p>\n<p>The funding will cover essential administrative activities required to set up the consortium, including coordination, legal agreements, and initial project management. Further research funding is anticipated to arise from the coordinated efforts and collaborative grant applications of the consortium members.<\/p>\n<p>We invite researchers and institutions to join us in this critical initiative to improve the lives of those affected by Col6-CMD through innovative and collaborative research.<\/p>\n<p>In the following link you can find the application forms. Together, we can make a significant impact on this rare disease.<\/p>\n<ul>\n<li><a href=\"https:\/\/fundacionnoelia.org\/wp-content\/uploads\/2024\/07\/ENG_Bases_ayuda_Col6_FundacionNoelia.docx\" target=\"_blank\" rel=\"noopener\">Conditions<\/a><\/li>\n<li><a href=\"https:\/\/fundacionnoelia.org\/wp-content\/uploads\/2024\/07\/ENG_Participation-Form.docx\" target=\"_blank\" rel=\"noopener\">Participation form<br \/>\n<\/a><\/li>\n<\/ul>\n<p>* Deadline extension undetermined<\/p>\n<p>&nbsp;<\/p>\n<h3>PARTICIPATION OF FUNDACI\u00d3N NOELIA IN THE INTERNATIONAL CONSORTIUM FOR COL6-CMD RESEARCH<\/h3>\n<p>Fundaci\u00f3n Noelia reaffirms its commitment to promoting and supporting scientific research aimed at understanding, treating, and ultimately curing Collagen VI Related Congenital Muscular Dystrophy (COL6-CMD). In this context, participation in international initiatives is essential to accelerate progress in the field.<\/p>\n<p>The \u201cCOL-6 International Consortium for Collagen VI Research\u201d has been established with the objective of advancing scientific knowledge and developing therapeutic strategies for COL6-CMD through international cooperation and data sharing. This initiative brings together institutions and experts to coordinate efforts and maximize the impact of research.<\/p>\n<p>The Consortium\u2019s proposal outlines several key strategic objectives. First, the identification of gene-directed therapies, including gene therapy, gene editing, and RNA-based approaches, aimed at correcting or mitigating the pathological features caused by COL6-CMD variants. In addition, the development of animal models that accurately replicate the clinical and pathological characteristics of the disease will support therapeutic testing.<\/p>\n<p>Another essential focus is preclinical validation, which involves assessing the safety and efficacy of candidate therapies before they are introduced into human studies. The Consortium will also work on identifying optimal delivery systems to ensure targeted and effective distribution of treatments.<\/p>\n<p>Clinical trial readiness is another priority, with efforts directed toward developing outcome measures and biomarkers that facilitate a smooth transition into clinical phases. At the same time, patient-centered research will be promoted by actively involving patient communities in defining research priorities and directions.<\/p>\n<p>Finally, the Consortium places strong emphasis on collaboration and responsible data sharing, fostering open communication and international cooperation among participating institutions.<\/p>\n<p>Participation in this Consortium is fully aligned with the mission and strategic goals of Fundaci\u00f3n Noelia and is expected to make a significant contribution to advancing research for the benefit of individuals affected by COL6-CMD.<\/p>\n<p>Other participants in the COL-6 International Consortium for Collagen VI Research, in addition to Fundaci\u00f3n Noelia, include the National Institutes of Health (NIH), Institut de Recerca Sant Joan de D\u00e9u, University College London, the Research Center in Myology, Instituto de Investigaci\u00f3n Sanitaria Biobizkaia and Biogipuzkoa, and Cure CMD.<\/p>\n<p><a href=\"https:\/\/fundacionnoelia.org\/wp-content\/uploads\/2026\/04\/ACCEPTANCE_FunNoelia.pdf\" target=\"_blank\" rel=\"noopener\">BOARD OF TRUSTEES ACCEPTANCE RESOLUTION<\/a><\/p>\n<p><img loading=\"lazy\" decoding=\"async\" class=\"alignnone size-large wp-image-63062\" src=\"https:\/\/fundacionnoelia.org\/wp-content\/uploads\/2026\/04\/Consorcio-Redes_ENG-1024x965.png\" alt=\"\" width=\"980\" height=\"924\" srcset=\"https:\/\/fundacionnoelia.org\/wp-content\/uploads\/2026\/04\/Consorcio-Redes_ENG-1024x965.png 1024w, https:\/\/fundacionnoelia.org\/wp-content\/uploads\/2026\/04\/Consorcio-Redes_ENG-300x283.png 300w, https:\/\/fundacionnoelia.org\/wp-content\/uploads\/2026\/04\/Consorcio-Redes_ENG-768x724.png 768w, https:\/\/fundacionnoelia.org\/wp-content\/uploads\/2026\/04\/Consorcio-Redes_ENG-600x566.png 600w, https:\/\/fundacionnoelia.org\/wp-content\/uploads\/2026\/04\/Consorcio-Redes_ENG.png 1292w\" sizes=\"auto, (max-width: 980px) 100vw, 980px\" \/>[\/vc_column_text][\/vc_column][vc_column width=&#8221;1\/6&#8243;][\/vc_column][\/vc_row]\n","protected":false},"excerpt":{"rendered":"<p>[vc_row][vc_column width=&#8221;1\/6&#8243;][\/vc_column][vc_column width=&#8221;4\/6&#8243;][vc_empty_space][vc_empty_space][vc_column_text] INTERNATIONAL CONSORTIUM FOR COL6-CMD RESEARCH CREATION OF A INTERNATIONAL CONSORTIUM FOR COL6-CMD RESEARCH [\/vc_column_text][vc_empty_space][vc_column_text] GRANT CALL FOR START-UP COSTS: INTERNATIONAL CONSORTIUM FOR COL6-CMD RESEARCH We are excited to announce a grant call to support the start-up costs for the International Consortium for Col6 Research. This grant aims to facilitate the establishment of&hellip;<\/p>\n","protected":false},"author":1,"featured_media":63079,"parent":19389,"menu_order":0,"comment_status":"closed","ping_status":"closed","template":"","meta":{"footnotes":""},"class_list":["post-57799","page","type-page","status-publish","has-post-thumbnail","hentry","entry","no-media"],"yoast_head":"<!-- This site is optimized with the Yoast SEO plugin v27.2 - https:\/\/yoast.com\/product\/yoast-seo-wordpress\/ -->\n<title>International Consortium for Col6-CMD Research - Fundaci\u00f3n Noelia<\/title>\n<meta name=\"robots\" content=\"index, follow, max-snippet:-1, max-image-preview:large, max-video-preview:-1\" \/>\n<link rel=\"canonical\" href=\"https:\/\/fundacionnoelia.org\/en\/research-projects\/international-consortium-for-col6-cmd-research\/\" \/>\n<meta property=\"og:locale\" content=\"en_US\" \/>\n<meta property=\"og:type\" content=\"article\" \/>\n<meta property=\"og:title\" content=\"International Consortium for Col6-CMD Research - Fundaci\u00f3n Noelia\" \/>\n<meta property=\"og:description\" content=\"[vc_row][vc_column width=&#8221;1\/6&#8243;][\/vc_column][vc_column width=&#8221;4\/6&#8243;][vc_empty_space][vc_empty_space][vc_column_text] INTERNATIONAL CONSORTIUM FOR COL6-CMD RESEARCH CREATION OF A INTERNATIONAL CONSORTIUM FOR COL6-CMD RESEARCH [\/vc_column_text][vc_empty_space][vc_column_text] GRANT CALL FOR START-UP COSTS: INTERNATIONAL CONSORTIUM FOR COL6-CMD RESEARCH We are excited to announce a grant call to support the start-up costs for the International Consortium for Col6 Research. This grant aims to facilitate the establishment of&hellip;\" \/>\n<meta property=\"og:url\" content=\"https:\/\/fundacionnoelia.org\/en\/research-projects\/international-consortium-for-col6-cmd-research\/\" \/>\n<meta property=\"og:site_name\" content=\"Fundaci\u00f3n Noelia\" \/>\n<meta property=\"article:modified_time\" content=\"2026-04-22T09:57:14+00:00\" \/>\n<meta property=\"og:image\" content=\"https:\/\/fundacionnoelia.org\/wp-content\/uploads\/2026\/04\/Consorcio_proyectos-1.png\" \/>\n\t<meta property=\"og:image:width\" content=\"900\" \/>\n\t<meta property=\"og:image:height\" content=\"600\" \/>\n\t<meta property=\"og:image:type\" content=\"image\/png\" \/>\n<meta name=\"twitter:card\" content=\"summary_large_image\" \/>\n<meta name=\"twitter:label1\" content=\"Est. reading time\" \/>\n\t<meta name=\"twitter:data1\" content=\"3 minutes\" \/>\n<script type=\"application\/ld+json\" class=\"yoast-schema-graph\">{\"@context\":\"https:\/\/schema.org\",\"@graph\":[{\"@type\":\"WebPage\",\"@id\":\"https:\/\/fundacionnoelia.org\/en\/research-projects\/international-consortium-for-col6-cmd-research\/\",\"url\":\"https:\/\/fundacionnoelia.org\/en\/research-projects\/international-consortium-for-col6-cmd-research\/\",\"name\":\"International Consortium for Col6-CMD Research - 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Fundaci\u00f3n Noelia","robots":{"index":"index","follow":"follow","max-snippet":"max-snippet:-1","max-image-preview":"max-image-preview:large","max-video-preview":"max-video-preview:-1"},"canonical":"https:\/\/fundacionnoelia.org\/en\/research-projects\/international-consortium-for-col6-cmd-research\/","og_locale":"en_US","og_type":"article","og_title":"International Consortium for Col6-CMD Research - Fundaci\u00f3n Noelia","og_description":"[vc_row][vc_column width=&#8221;1\/6&#8243;][\/vc_column][vc_column width=&#8221;4\/6&#8243;][vc_empty_space][vc_empty_space][vc_column_text] INTERNATIONAL CONSORTIUM FOR COL6-CMD RESEARCH CREATION OF A INTERNATIONAL CONSORTIUM FOR COL6-CMD RESEARCH [\/vc_column_text][vc_empty_space][vc_column_text] GRANT CALL FOR START-UP COSTS: INTERNATIONAL CONSORTIUM FOR COL6-CMD RESEARCH We are excited to announce a grant call to support the start-up costs for the International Consortium for Col6 Research. 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