{"id":20938,"date":"2022-05-25T10:25:18","date_gmt":"2022-05-25T10:25:18","guid":{"rendered":"https:\/\/fundacionnoelia.org\/?page_id=20938"},"modified":"2022-05-25T10:25:18","modified_gmt":"2022-05-25T10:25:18","slug":"day-to-day","status":"publish","type":"page","link":"https:\/\/fundacionnoelia.org\/en\/news\/day-to-day\/","title":{"rendered":"Day-to-day"},"content":{"rendered":"[vc_row][vc_column width=”1\/6″][\/vc_column][vc_column width=”4\/6″]
Day-to-day of the foundation<\/span><\/div>
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COL6 DAY: EVirtual Event<\/a><\/h2>
July 1, 2025<\/div>

On June 6th, the first virtual edition of COL6 DAY took place, an event organized…<\/p><\/div>

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New advance in the research of Congenital Muscular Dystrophy due to Collagen Deficiency VI (CMD COL6)<\/a><\/h2>
February 13, 2025<\/div>

The Fundaci\u00f3n Noelia has funded an innovative study led by researcher Virginia Arechavala-Gomeza, which takes…<\/p><\/div>

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Conference on Rare Disease Research Organized by FEDER<\/a><\/h2>
November 23, 2024<\/div>

The Importance of Patient Participation in Rare Disease Research This event, organized by FEDER (Spanish…<\/p><\/div>

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February 29, International Day of Rare Diseases<\/a><\/h2>
March 1, 2024<\/div>

On World Rare Disease Day, we raise our voices to shed light on collagen VI…<\/p><\/div>

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Fundaci\u00f3n Noelia has received support from the \u201cla Caixa\u201d Foundation, through CaixaBank<\/a><\/h2>
January 12, 2024<\/div>

Noelia Children's Foundation against congenital muscular dystrophy due to Collagen VI deficiency has received support…<\/p><\/div>

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New contribution to Dr. B\u00f6nnemann’s team<\/a><\/h2>
December 12, 2023<\/div>

Thanks to you, Fundaci\u00f3n Noelia, achieves one of its goals for 2023 and donates $120,000…<\/p><\/div>

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New contribution to research<\/a><\/h2>
August 1, 2023<\/div>

This month of July 2023, from Fundacion Noelia we have delivered the \u20ac38,095 that allow…<\/p><\/div>

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Visit to Biocruces<\/a><\/h2>
June 21, 2023<\/div>

Last April we visited the Biocruces Health Research Institute in Bizkaia, where Fundaci\u00f3n Noelia financed…<\/p><\/div>

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We continue betting on research!<\/a><\/h2>
April 20, 2023<\/div>

Based on the good results obtained in the previous phase, Fundaci\u00f3n Noelia has signed a…<\/p><\/div>

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FN 2023 objective: \u20ac237,000 for research<\/a><\/h2>
February 19, 2023<\/div>

We need your help! It all adds up! These funds will make it possible to…<\/p><\/div>

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$12,500 to continue supporting research<\/a><\/h2>
January 3, 2023<\/div>

Fundaci\u00f3n Noelia makes the second contribution of $12,500 to the project led by Dr.B\u00f6nneman's team…<\/p><\/div>

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\u20ac173,853 invested in research in 2022<\/a><\/h2>
December 27, 2022<\/div>

Closing the year it is time to do the numbers and see what this 2022…<\/p><\/div>

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