MOBILIZATIONS AND STRETCHING EXERCISES
Physiotherapy is key in the treatment of Collagen VI Congenital Muscular Dystrophy
Physiotherapy is a fundamental therapeutic resource to maximize the patient’s functional capacity and minimize complications. It helps to prevent and/or reducing muscle contractures, preventing and/or reducing joint and spinal stiffness as well as delaying the appearance of retractions.
In this document, you can find a set of mobilizations and stretching exercises that can be conducted on a daily basis at home by either the physiotherapist or the caregiver.
(Document prepared by the team of physiotherapists at the Sant Joan de Déu Hospital in Barcelona, with the collaboration of the Noelia Foundation)
Below you will find some videos put prepared by the Rehab Team of the Sant Joan de Déu University Children’s Hospital to learn how to carry out rehab exercises at home or when away from the daily routine
Lower limb mobilization for patients with low mobility
Exercises for patients with neuromuscular diseases
Upper limb mobilization for patients with low mobility
1. COUGH-ASSISTING EXERCISES WHEN THERE IS ACCUMULATION OF MUCUS
Assisted-cough exercises
2. EXERCISES TO CONTROL VENTILATION
Abdominal-diaphragmatic breathing for teens
Abdominal-diaphragmatic breathing for kids
3. EXERCISE TECHNIQUES WITH VOLUMETRIC INCENTIVE
Volumetric incentive for teens
Volumetric incentive for kids
4. TECHNIQUES TO DECREASE HYPERINSUFFLATION
Pressure exercises for teens
Frowning lip exercises for children
Pressure exercises for kids
Breathing exercises through playing
5. TECHNIQUES TO EXPAND THE RIB CAGE
Rib cage expansion exercises for teens
Rib cage expansion exercises for kids
WHAT ARE THE CONSEQUENCES OF NOT KEEPING AN EXERCISE ROUTINE?
Loss of physical condition, loss of flexibility and joint retraction. In short, a general worsening of physical condition, so much more if we take into account that these are patients already with some kind of disability or functional limitation
IF THE CHILD HAS A MOBILITY IMPAIRMENT ¿HOW CAN I DO IT?
Some exercises are designed for the child to collaborate while others are aimed at children with greater disabilities, in which case the caregiver must perform them on the child, using the videos as tutorials.
CAN THE CHILD DO THE EXRCISES BY HIMSELF/HERSELF? SHOULD HE/SHE BE ASSISTED OR SUPERVISED?
It is always better for an adult to supervise and motivate the child during the exercise routine. Otherwise, if alone, they tend to lose adherence.
CAN I MOTIVATE HIM/HER IN ANY WAY TO KEEP ON WITH THE ACTIVITIES?
Exercises can be presented as a game for the younger ones. Also, music is a great element to go along the activity or, in the case of teenagers, exercising can be presented as a challenge.