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Who We Are

The Noelia Foundation, children against Collagen VI – congenital muscular dystrophy is an organization that was created as a result of our son, Adrià, being diagnosed with this condition at age 3.

It is a rare degenerative disease that currently has no treatment, so our only way to help our son is by driving research on the disease.

Noelia Foundation is a non-profit organization based in Catalonia, with international scope, that raises money to fund research oriented to finding a cure for all those children who, like Adrià, suffer from this serious disease.