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  • The main purpose of the Foundation is to support scientific research on this disease to prolong the life of these children and find out a treatment or cure for the disorder.
  • To increase awareness of this unknown disease in society.
  • Raise funds for research in order to conduct clinical trials.
  • Gather the maximum number of patients with Collagen VI - Congenital Muscular Dystrophy and their families, to join efforts in finding solutions to fight the evolution of the disease and understand its nature. Patient registries are vital for this purpose.