One more year Noelia Foundation present in the Day of families with Neuromuscular Diseases, organized by the NRM team of the Sant Juan de Dios Hospital in Barcelona. These have been very rewarding days, since we have seen that the effort of the associative movement is vital, so that the research projects continue.
VI DAY OF FAMILIES WITH NEUROMUSCULAR DISEASES, HSJD BARCELONA OCTOBER 2019
2019 CONGENITAL MUSCLE DISEASE SCIENTIFIC & FAMILY CONFERENCE. JULY 2019
Last July, Noelia Foundation attended the 2019 Congenital Muscle Disease Scientific & Family Conference organized in Chicago by Cure CMD, an event that brought together researchers from around the world to share their experience on these congenital diseases.
Once again, Noelia Foundation was present at this unique reference event to learn first-hand about...
(CA) V JORNADA INFORMATIVA DE FAMÍLIES AMB MALALTIES NEUROMUSCULARS. HSJD BARCELONA, OCUTUBRE 2018
Sorry, this entry is only available in CA and European Spanish.
...SCIENTIFIC SEMINAR DR. C. BÖNNEMANN. HVH BARCELONA, JULY 2018
On July 9th and 10th, Noelia Foundation participated in the scientific CMD seminar plus a patient and families meeting, which took place in the Vall d’Hebrón University Hospital. The event was lead by Dr Carsten Bönnemann, neuropediatrician and expert geneticist in Congenital Muscular Dystrophies from the National Institutes of Health (Bethesda, Washington, US). In this short...