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Category Archives: News

Fabulous concert by Marta Gómez in the Sala Milano in Barcelona

Fabulous concert by Marta Gómez, dedicated to those affected by Congenital Muscular Dystrophy due to collagen deficiency VI, in the beautiful Sala Milano in Barcelona.

Last March 14, Marta Gómez, presented of her new album "La Alegría del Canto" managed to raise € 1,031 that will be allocated to the investigation of...

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The YKK Sports Team in the Barcelona Marathon!

The YKK Sports Team finished the Barcelona Marathon! They ran 42 km for Collagen VI Congenital Muscular Dystrophy, under the slogan "Run For Hope". Some Collagen VI- CMD families did not want to miss it and came to welcome them at the finish line.

Thanks to the efforts of the whole team,...

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Exhibition Rare Artists

The Exhibition Rare Artists, which took place on February 27th and 28th, in Uruguay, was a success thanks to Valentino’s parents, who represented the Noelia Foundation on the International Day of Rare Diseases, and their friends. We also want to thank all those artists who donated their work and helped raise 1,470€, which...

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1st Fundraising Dinner Supporting the Noelia Foundation

We are pleased to share with all of you, that in the 1st Fundraising Dinner Supporting the Noelia Foundation in Madrid, 34.265,52€ were raised. We would like to thank “Grandes Chefs” their cooperation in the event, as well as all attendees and volunteers for their generosity and to Francisco Patón and Hotel Villa...

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