Fundación Noelia and the National Institute of Neurological Disorders and Stroke (NINDS) in the US have just signed a collaboration agreement by which Fundación Noelia will fund a new research project led by Dr. Carsten Bönnemann, with a total contribution of $150,000. The project, “RNA editing by recruiting endogenous ADAR, using long RNAs to correct Glycine Substitutions in COL6-RD" opens a new door to the cure of Collagen VI Congenital Muscular Dystrophy.
This February, we made the first contribution of $75,000, and expect to make the second contribution next September.
With your contributions you make research possible and bring us closer to a possible cure.
A million thanks from the bottom of our heart.