On February 25, a new information session was held aimed at families and affected by…
SEMINAR Dr. Carsten Bönnemann
On July 9th and 10th, Noelia Foundation participated in the scientific CMD seminar plus a patient and families meeting, which took place in the Vall d’Hebrón University Hospital. The event was lead by Dr Carsten Bönnemann, neuropediatrician and expert geneticist in Congenital Muscular Dystrophies from the National Institutes of Health (Bethesda, Washington, US). In this short venue, Dr Bönnemann presented the current therapeutic approaches to Collagen VI Congenital Muscular Dystrophies, a research co-funded by Noelia Foundation.