On March 7, 2025, the Fundación Noelia had the honor of participating in the Nano Rare Diseases Day, held at the Auditorio Plaza of the Sant Joan de Déu University Hospital in Barcelona. This event, organized as part of World…
On February 25, a new information session was held aimed at families and affected by collagen VI, where a summary of all the activities carried out during the past year 2022 was made, in order to continue meeting the objectives…
On November 26, the FN team participated for another year in the 9th Information Conference for Patients and Families with Neuromuscular Diseases. In this already endearing scientific event organized by the SJD Hospital in Barcelona, one of the flagship institutions…
Noelia Foundation participates in the VI Scientific Meeting of the Italian association of DMC-Col6 patients, Collagene VI Italia APS On October 29, 2022, the Noelia Foundation participated in the VI Scientific Meeting of its Italian counterpart Collagene VI Italia APS.…
Last week, delegates of Fundación Noelia attended the 2022 edition of the SciFam Meeting 2022 by CureCMD in Nashville, Tennessee (USA). At the event, leading members of the research community presented their results and discussed with fellow scientists about the…
On June 10, 11 and 12, 2022, the I Scientific and Family Meeting Muscular Dystrophy Collagen VI took place virtually, organized by the Noelia Foundation. During the first two days, scientific and clinical issues were discussed, while the last day…
Noelia Foundation participates in the Conference on Rare and Complex Diseases at the Hospital Sant Joan de Déu in Barcelona Last February 27, 2020, the Conference on Rare and Complex Diseases and 1st Exhibition of Patients' Associations was held, organized…
One more year Noelia Foundation present in the Day of families with Neuromuscular Diseases, organized by the NRM team of the Sant Juan de Dios Hospital in Barcelona. These have been very rewarding days, since we have seen that the…
Last July, Noelia Foundation attended the 2019 Congenital Muscle Disease Scientific & Family Conference organized in Chicago by Cure CMD, an event that brought together researchers from around the world to share their experience on these congenital diseases. Once again,…
On July 9th and 10th, Noelia Foundation participated in the scientific CMD seminar plus a patient and families meeting, which took place in the Vall d’Hebrón University Hospital. The event was lead by Dr Carsten Bönnemann, neuropediatrician and expert geneticist in Congenital…
