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Category Archives: Everyday Fundation

Opening of the EURORDIS headquarters in Barcelona

Noelia Foundation was present on 31 March 2016 at the opening of the EURORDIS headquarters in Barcelona (European Organisation for Rare Diseases) in the modernist enclosure of Hospital Santa Creu and Sant Pau. EURORDIS will be located at Apolonia’s Pavilion.

This entity is a non-governmental organization led by an alliance of patients,...

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London Congress

On the weekend of the 26th - 27th of September we took part in a congress hosted by Muscular Dystrophy UK in London. Speakers at the congress included researchers who study different kinds of muscular dystrophy and also affected families.

We had the chance to speak to Dr. Reghan Foley, from the...

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