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News with hope. Research moves ahead and together we make it happen!

On July 9th and 10th, Noelia Foundation participated in the scientific CMD seminar plus a patient and families meeting, which took place in the Vall d’Hebrón University Hospital. The event was lead by Dr Carsten Bönnemann, neuropediatrician and expert geneticist in Congenital Muscular Dystrophies from the National Institutes of Health (Bethesda, Washington, US). In this short venue, Dr Bönnemann presented the current therapeutic approaches to Collagen VI Congenital Muscular Dystrophies, a research co-funded by Noelia Foundation.

You can find here a summary by Noelia Foundation of what was presented and discussed in the two sessions.


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